Episode 47 - Coffin Lowry Syndrome Foundation

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CoRDS Cast

Sanford CoRDS

53 episodes

1 day ago

This is CoRDS Cast, a rare disease podcast created by the team at Sanford Research. Our rare disease registry, CoRDS, connects patients and researchers everywhere. Here, you'll hear interviews with patients, patient advocates, physicians, and researchers to raise awareness about the 7,000 rare conditions affecting 1 in 10 people worldwide.

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Episode 47 - Coffin Lowry Syndrome Foundation

CoRDS Cast

21 minutes 13 seconds

1 year ago

Episode 47 - Coffin Lowry Syndrome Foundation

On today's episode, Alyssa and Polly sit down with Theresa who is a part of the Coffin Lowry Syndrome Foundation.

Theresa's son was diagnosed with Coffin Lowry Syndrome at the age of four. Theresa discusses the long journey ahead to finding a diagnosis for her son. Theresa has been a major part in growing their community with over 800 members and devoted her life to finding a cure. If you would like to learn more about the Coffin Lowry Syndrome Association, please visit: www.clsf.info

Enjoy!