Episode 43 - Recruiting to Patient Registries

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CoRDS Cast

Sanford CoRDS

53 episodes

2 days ago

This is CoRDS Cast, a rare disease podcast created by the team at Sanford Research. Our rare disease registry, CoRDS, connects patients and researchers everywhere. Here, you'll hear interviews with patients, patient advocates, physicians, and researchers to raise awareness about the 7,000 rare conditions affecting 1 in 10 people worldwide.

Health & Fitness

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All content for CoRDS Cast is the property of Sanford CoRDS and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Health & Fitness

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Episode 43 - Recruiting to Patient Registries

CoRDS Cast

32 minutes

3 years ago

Episode 43 - Recruiting to Patient Registries

On this exciting episode of CoRDS Cast, Alyssa sits down with Sophia Zilber from the Cure Mito Foundation and Allison Peck from Cure VCP Inc. Sophia and Allison are both very strong advocates for their foundation and have done an amazing job recruiting to their registries. Tune in to learn how they have built their registries along with different strategies to make it successful.
Enjoy!

Contact information:

Sophia Zilber: email: sophia@curemito.org Website: https://www.curemito.org/
Allison Peck: email: allison@curevcp.org Website: https://www.curevcp.org/