Episode 36 - Cystinosis Research Foundation

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CoRDS Cast

Sanford CoRDS

53 episodes

5 days ago

This is CoRDS Cast, a rare disease podcast created by the team at Sanford Research. Our rare disease registry, CoRDS, connects patients and researchers everywhere. Here, you'll hear interviews with patients, patient advocates, physicians, and researchers to raise awareness about the 7,000 rare conditions affecting 1 in 10 people worldwide.

Health & Fitness

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All content for CoRDS Cast is the property of Sanford CoRDS and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Health & Fitness

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Episode 36 - Cystinosis Research Foundation

CoRDS Cast

28 minutes 11 seconds

4 years ago

Episode 36 - Cystinosis Research Foundation

We are starting off September with a very inspiring story of two fathers who have children with Cystinosis. On this episode of CoRDS cast, Alyssa sits down with Clay Emerson and Stephen Jenkins. Clay is a father to 6 year old Brooke who was diagnosed with Cystinosis at just 16 months. Stephen is a father of two sons diagnosed with Cystinosis, Sam and Lars. Cystinosis is a rare genetic metabolic disease that causes the amino acid, cysteine, to accumulate within the body’s cells. The build-up can cause damage to the tissues and organs including the kidney, eyes, muscles, liver and brain. Tune in to hear about the journey that Clay and Stephen took to become strong advocates for their children and for the community.