Episode 35 - Gene DDX3x

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CoRDS Cast

Sanford CoRDS

53 episodes

5 days ago

This is CoRDS Cast, a rare disease podcast created by the team at Sanford Research. Our rare disease registry, CoRDS, connects patients and researchers everywhere. Here, you'll hear interviews with patients, patient advocates, physicians, and researchers to raise awareness about the 7,000 rare conditions affecting 1 in 10 people worldwide.

Health & Fitness

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All content for CoRDS Cast is the property of Sanford CoRDS and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Health & Fitness

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Episode 35 - Gene DDX3x

CoRDS Cast

13 minutes 56 seconds

4 years ago

Episode 35 - Gene DDX3x

On this episode of CoRS Cast, Polly sits down with Robin Henry who is a strong advocate for DDX3x and also has a daughter, Lanie, with this condition. DDX3x Is caused by a spontaneous mutation at conception. This condition Primarily affects girls due to its location on the X-chromosome, though there are affected boys. Robin continues to be a strong advocate for her daughter’s condition and started a Facebook group called Gene DDX3x. For more information regarding this condition you can visit: https://ddx3x.org/