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Confessions of a Rare Disease Mama
Jillian Arnold
66 episodes
1 week ago
Send us a text After a four-month break, we’re back and catching up on everything! In this episode, I sit down with my partner-in-crime (and life), Donald, to chat about what life has looked like lately for our family. From three back-to-back road trips (yes, we’re still recovering!) to the kids starting in-person school for the first time, it’s been a season full of change, growth, and plenty of stories. We open up about: 🚗 The three road trips that (at times) tested our sanity, but al...
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Parenting
Education,
Kids & Family,
Self-Improvement,
Health & Fitness,
Medicine
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Send us a text After a four-month break, we’re back and catching up on everything! In this episode, I sit down with my partner-in-crime (and life), Donald, to chat about what life has looked like lately for our family. From three back-to-back road trips (yes, we’re still recovering!) to the kids starting in-person school for the first time, it’s been a season full of change, growth, and plenty of stories. We open up about: 🚗 The three road trips that (at times) tested our sanity, but al...
Show more...
Parenting
Education,
Kids & Family,
Self-Improvement,
Health & Fitness,
Medicine
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Navigating Resources and Grants with Advocacy Abby
Confessions of a Rare Disease Mama
58 minutes
8 months ago
Navigating Resources and Grants with Advocacy Abby
Send us a text Finding financial support and resources as a rare disease parent can feel overwhelming—but what if there was a platform designed to make it easier? In this episode of Confessions of a Rare Disease Mama, I sit down with Abby Zachritz, also known as Advocacy Abby, to talk about the incredible tool she’s created in partnership with SupportNow to connect families with grants and resources tailored to their child’s diagnosis and location. Abby shares how her own experiences as a mot...
Confessions of a Rare Disease Mama
Send us a text After a four-month break, we’re back and catching up on everything! In this episode, I sit down with my partner-in-crime (and life), Donald, to chat about what life has looked like lately for our family. From three back-to-back road trips (yes, we’re still recovering!) to the kids starting in-person school for the first time, it’s been a season full of change, growth, and plenty of stories. We open up about: 🚗 The three road trips that (at times) tested our sanity, but al...