Coming Undone is a platform where I will share my personal health journey and the ultimate point where I landed...with a diagnosis of Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Narcolepsy and more (sadly). It will also document the day to day journey of a woman living with chronic invisible illness.
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Coming Undone is a platform where I will share my personal health journey and the ultimate point where I landed...with a diagnosis of Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Narcolepsy and more (sadly). It will also document the day to day journey of a woman living with chronic invisible illness.
You’re not sick....You’re too young to...you lost weight? You’re a woman, you should be happy about that. It’s probably low blood sugar, just eat snacks and drink water throughout the day. We tested you for DQB1*0602 and you were negative. 90% of people with narcolepsy test positive for this, you just have to regulate your sleep schedule. You’re a single mom, of course you’re tired! (The things you are told when they don’t really know what box to throw you into)
Coming Undone
Coming Undone is a platform where I will share my personal health journey and the ultimate point where I landed...with a diagnosis of Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Narcolepsy and more (sadly). It will also document the day to day journey of a woman living with chronic invisible illness.
