This episode talks mostly about my piano teaching philosophy and not so much about EDS. Don’t get me wrong, I have Ehlers Danlos..and it sucks...but there is more to life than just that.

No one wants to feel weak or drag people down. Just think of “Debbie Downer” at the dinner table on Christmas 🤣 however, as they say “sharing is caring.” Sometimes being open and honest even at the cost of seeming frail or pathetic even is better than living in isolation and holding back something that could help someone else who feels alone in their situation. If you love the show and what it stands for feel free to donate on Venmo @happykeyspianoschool

You’re not sick....You’re too young to...you lost weight? You’re a woman, you should be happy about that. It’s probably low blood sugar, just eat snacks and drink water throughout the day. We tested you for DQB1*0602 and you were negative. 90% of people with narcolepsy test positive for this, you just have to regulate your sleep schedule. You’re a single mom, of course you’re tired! (The things you are told when they don’t really know what box to throw you into)

In life you have to make a choice, to sink or to swim...maybe it’s not that black and white...maybe you need swimmies, and that is OK. Join Jessica Jenks as she shares her navigations through this semi-new phase of her life: invisible illness.