Hailey Somerfield is one in 13 million. The cheeky 2-year-old is a social butterfly, who is always giggling, smiling and enjoys dancing to her favourite songs.  

Hailey is one of the four Australians and only female living with KAT6 Syndrome and is living life the way her parents didn’t think would be possible. 

KAT6 syndrome is an extremely rare genetic neurodevelopment disorder that affects the KAT6 gene, altering the development of the brain and central nervous system.  

Hailey’s mum Kathryn speaks with us about Hailey’s heartwarming story and their involvement with Rocky Bay and the Early Start Intervention Program.