CForYourself: A podcast from Cystic Fibrosis Trust
Cystic Fibrosis Trust
25 episodes
2 months ago
Over 11,000 people have cystic fibrosis in the UK, but it’s still widely misunderstood. Is that the condition where you cough a lot? Is it like asthma? Is that the one where you have to bash the chest? Is it contagious? But you don’t look very sick! The CF community will have heard them all! So in this special episode to mark CF Week, we're going to be talking about the actual reality of living with a life-limiting condition like CF. Joining Lucy for a chat is Emily. Emily is 22 a...
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Over 11,000 people have cystic fibrosis in the UK, but it’s still widely misunderstood. Is that the condition where you cough a lot? Is it like asthma? Is that the one where you have to bash the chest? Is it contagious? But you don’t look very sick! The CF community will have heard them all! So in this special episode to mark CF Week, we're going to be talking about the actual reality of living with a life-limiting condition like CF. Joining Lucy for a chat is Emily. Emily is 22 a...
CForYourself: A podcast from Cystic Fibrosis Trust
45 minutes
5 months ago
CForYourself: Clinical Trials Day and CF research
To mark Clinical Trials Day (20 May), we’re excited to be teaming up with US-based non-profit Emily’s Entourage on this episode of CForYourself. Started by Emily Kramer-Golinkoff in her parent’s living room, Emily’s Entourage (EE) aims to speed-up lifesaving research and drug development for people with cystic fibrosis (CF) who do not benefit from current modulators. “At Emily’s Entourage, we believe that every single person with CF deserves a lifesaving breakthrough, no matter how rare their...
CForYourself: A podcast from Cystic Fibrosis Trust
Over 11,000 people have cystic fibrosis in the UK, but it’s still widely misunderstood. Is that the condition where you cough a lot? Is it like asthma? Is that the one where you have to bash the chest? Is it contagious? But you don’t look very sick! The CF community will have heard them all! So in this special episode to mark CF Week, we're going to be talking about the actual reality of living with a life-limiting condition like CF. Joining Lucy for a chat is Emily. Emily is 22 a...
