Neil Haley welcomes Hall of Fame basketball legend Alonzo Mourning and LaVarne Addison Burton, CEO of the American Kidney Fund (AKF), to discuss APOL1-mediated kidney disease (AMKD). Alonzo shares his personal experience with kidney disease, emphasizing the importance of early detection, proactive healthcare, genetic testing, and open communication with doctors—especially for people of color, who are at a higher risk for AMKD.
1. Understanding AMKD:
APOL1-mediated kidney disease is caused by specific genetic mutations in the APOL1 gene.
Higher risk among individuals with African, Afro-Caribbean, Latino/Latina, and Black American heritage.
2. Alonzo Mourning's Personal Story:
Diagnosed following abnormal blood tests and fatigue during the 2000 Olympics.
Initial symptoms included swelling in legs and fatigue.
Eventually diagnosed with focal segmental glomerulosclerosis (FSGS), a form of AMKD.
Received a kidney transplant in 2003, returned to professional basketball, and won an NBA championship in 2006.
3. Importance of Early Detection:
Recognizing and not ignoring symptoms can prevent or delay kidney failure.
Encourages listeners to be proactive and visit doctors regularly.
4. Genetic Testing and Medical Care:
Genetic testing is crucial to identifying AMKD.
Encourages seeking multiple medical opinions for accurate diagnosis and effective care.
5. Addressing Medical Mistrust:
Alonzo highlights the historical mistrust of healthcare in communities of color.
Emphasizes importance of overcoming this mistrust to ensure proper care.
6. Awareness Initiatives:
Second annual AMKD Awareness Day observed on April 29th.
AKF providing comprehensive resources and education via their website.
“Health is wealth. If you don't have your health, you don't have anything.” – Alonzo Mourning
“Early detection can significantly improve outcomes and slow disease progression.” – LaVarne Addison Burton
American Kidney Fund Website: kidneyfund.org/amkd
Empower Forward Website: empowerforwardtogether.com
Alonzo Mourning: Hall of Fame Basketball Player, Spokesperson for Vertex Pharmaceuticals.
LaVarne Addison Burton: President and CEO, American Kidney Fund.
Key Discussion Points:Memorable Quotes:Resources and Information:Connect with Alonzo Mourning and AKF:
