Staying Anchored in Gratitude: Marfan Syndrome Awareness and Living Life to the Fullest With Fellow Mompreneur, Cassie Bartolomey

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Catwalk Through Life

Rashi Stephens

62 episodes

6 days ago

Catwalk Through Life is a place for listeners to get their dose of lifestyle inspiration. Focusing on ambition, positivity and developing an overall healthy lifestyle. Catwalk Through Life shares tips, stories, interviews and so much more for those who need a little push of positivity to get through the series of events we call “Life!” - Hosted by Rashi Stephens-Charlton, a former Miss India Global, Model, Actress, Red Carpet Host and Event Planner who’s also been featured in the book: Roshni | Global and Emerging Leaders.

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Self-Improvement

Education

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Staying Anchored in Gratitude: Marfan Syndrome Awareness and Living Life to the Fullest With Fellow Mompreneur, Cassie Bartolomey

Catwalk Through Life

51 minutes 17 seconds

5 months ago

Staying Anchored in Gratitude: Marfan Syndrome Awareness and Living Life to the Fullest With Fellow Mompreneur, Cassie Bartolomey

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Welcome back to Catwalk Through Life!

Today's episode focuses on Marfan Syndrome. Marfan Syndrome is a genetic disorder that affects connective tissue, the strong fibers that support organs and structures in the body. Since this disorder is not vastly known or talked about I wanted to bring more awareness to it.

In this episode, I'm joined by Cassie Bartolomey - a hardworking mother of 3, a go-getter, wife, boss lady, and a friend who has lived life with Marfan Syndrome. Today's episode includes talking points like having gratitude even when times get hard, having confidence in who you are no matter what labels are put on you, and what mindset shifts you can adopt to elevate your life.

Resources: https://www.mayoclinic.org/diseases-conditions/marfan-syndrome/symptoms-causes/syc-20350782

"What is Marfan Syndrome: Marfan syndrome is an inherited disorder that affects connective tissue — the fibers that support and anchor your organs and other structures in your body. Marfan syndrome most commonly affects the heart, eyes, blood vessels and skeleton.

People with Marfan syndrome are usually tall and thin with unusually long arms, legs, fingers and toes. The damage caused by Marfan syndrome can be mild or severe. If your aorta — the large blood vessel that carries blood from your heart to the rest of your body — is affected, the condition can become life-threatening.

Treatment usually includes medications to keep your blood pressure low to reduce the strain on your aorta. Regular monitoring to check for damage progression is vital. Many people with Marfan syndrome eventually require preventive surgery to repair the aorta."