Caregiver's Compass

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Caregiver's Compass

Stephanie Muskat

146 episodes

11 hours ago

The person you care for has a daily routine or activities in their daily life they hope to continue to uphold, but yet when connected to a new home care agency or when in hospital, they are told they may have to modify or change how they approach their activities of daily life. How can these third parties tell you and the person you care for how to participate in activities of daily living and why is this important? In today’s episode, Stephanie explores the background on why and how third pa...

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Health & Fitness

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The person you care for has a daily routine or activities in their daily life they hope to continue to uphold, but yet when connected to a new home care agency or when in hospital, they are told they may have to modify or change how they approach their activities of daily life. How can these third parties tell you and the person you care for how to participate in activities of daily living and why is this important? In today’s episode, Stephanie explores the background on why and how third pa...

Show more...

Health & Fitness

Episodes (20/146)

Caregiver's Compass

We have the right to our autonomy and right to live at risk- why is it that institutions or agencies are telling us how to engage in activities of daily life? (Episode 140)

The person you care for has a daily routine or activities in their daily life they hope to continue to uphold, but yet when connected to a new home care agency or when in hospital, they are told they may have to modify or change how they approach their activities of daily life. How can these third parties tell you and the person you care for how to participate in activities of daily living and why is this important? In today’s episode, Stephanie explores the background on why and how third pa...

11 hours ago

7 minutes

Caregiver's Compass

Experiencing a Father With Frontotemporal Degeneration as a 7 Year Old Child and Fiercely Advocating for Change and Awareness, with Spencer Cline (Episode 139)

Spencer Cline was only 7 years old when his father was first diagnosed with frontotemporal degeneration (behavioural variant). From a very young age, he witnessed how profoundly this illness affected his father, mother, and entire family. Today, Spencer is a passionate advocate for FTD, dedicated to changing the narrative around the disease and supporting those impacted by it. He recently biked 3600+ miles across America to raise awareness about FTD and continues to speak publicly and educate...

1 week ago

26 minutes

Caregiver's Compass

The Hidden Truths About Long-Term Care and What it will take to Create a Better Future in the Long-Term Care System with Dr. Vivian Stamatopoulos (Episode 138)

Vivian Stamatopoulos - advocate, professor, and long-time researcher in the field of caregiving and long-term care-joins the podcast to uncover the hidden truths about our long-term care system. Vivian shares what she realized during COVID about the nursing home crisis, where long-term care stands today, and the significant changes needed to improve care and shift the narrative for those living in nursing homes and the people who love them the most. This powerful conversation shines a light o...

2 weeks ago

51 minutes

Caregiver's Compass

Caregiving as a teenager for a mother with Parkinson’s disease and informing her career using technology to help others through caregiving experiences, with Carla Velastegui (Episode 137)

Carla Velastegui began caring for her mother with Parkinson’s disease while still in high school, experiencing both the challenges and deep insights that caregiving can bring. In this episode, Carla shares how those early experiences shaped her life, her relationships, and her future. She discusses the ups and downs of her caregiving journey and how it inspired her career as a consultant working with organizations to adapt and implement technology to assist and transform the caregiving experi...

3 weeks ago

38 minutes

Caregiver's Compass

The Statistics Behind Caregiver Mental Health: You’re Not Alone (Episode 136)

In this episode, we dive into the numbers behind caregiver mental health, sharing Canadian statistics that reveal just how many caregivers, including those who are working caregivers, face similar challenges. While it can often feel like you’re alone in your struggles, the truth is that far more people are experiencing the same difficulties than you may realize. Stephanie breaks down the facts to help you feel seen, supported, and connected in your caregiving journey. Visit us on our website...

4 weeks ago

5 minutes

Caregiver's Compass

Do I need to change my entire routine to feel better as a caregiver? (Episode 135)

In this episode, Stephanie explores a common question caregivers face: Do I need to change my entire routine to feel better if I am overwhelmed as a caregiver? When self-care feels overwhelming or unattainable, is a complete lifestyle overhaul the only answer-or can small, realistic steps make a real difference? Stephanie shares insights on what truly helps when you’re feeling stretched thin, offering practical ideas to support your well-being without adding more pressure. Visit us on our web...

1 month ago

9 minutes

Caregiver's Compass

What does the research show when it comes to caregiver mental health and is there hope on the horizon, with Dr. Adrianna Shnall (Episode 134)

Dr. Adrianna Shnall, program director at the Baycrest Kochinsky Centre, has been a social worker and clinician in the field of aging and caregiving for over 30 years. In today’s episode, she shares her top learnings in the field, what she feels is the most noteworthy in the area of aging and caregiver mental health today, and what may be on the horizon for caregivers in the future. Dr. Adriana Shnall: , PhD, MSW, RSW, serves as the Program Director of the Koschitzky Centre for Innovations i...

1 month ago

46 minutes

Caregiver's Compass

What if I promised the person I care for that I would always keep them at home, yet now I need to move them to a facility or other location, with Jeanette Yates (Episode 133)

Many of us have had the conversation- we vow to keep the person we care for home forever; We will never move them to a facility or otherwise... And then one day, reality hits, and we face the fact that we may not be able to follow through on this promise that once seemed feasible. In today’s episode, Jeanette Yates discusses how she navigated this exact situation with her own mother and what she learned in the process. She shares her experiences and learnings with listeners that are sur...

1 month ago

39 minutes

Caregiver's Compass

What is the purpose of a caregiver processing deep emotions in therapy (isn’t it better to just let these things go as life is already so stressful?) (Episode 132)

Why would you even want to talk about or process the deep emotions? The painful thoughts or feelings that just feel too difficult to think about? In caregiving, isn’t it easier to just let these go and focus on the task of hand since things are already so stressful? In today’s episode, Stephanie answers these questions and talks about why therapy can be so helpful for caregivers and why doing some of the hard work can lead to very positive benefits ongoing. Visit us on our website to...

1 month ago

9 minutes

Caregiver's Compass

Some of the WILD things people have said to me as a caregiver and following my mom’s passing (Episode 131)

In this episode, Stephanie shares some of the most memorable (frankly, ridiculous) things people have said to her while she was caring for her mother and following her mother’s passing. Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For more visit our Instagram! http://www.instagram.com/compassionincaregiving

2 months ago

10 minutes

Caregiver's Compass

From not speaking, to forming a close relationship and caregiving for both his parents (for years), with Charles Morris (Episode 130)

Charles Morris has an incredible story, and we are so thankful he is sharing it on our podcast today. From not speaking to his mother for years, to forming a beautiful and meaningful relationship with her, to moving in with his parents and caring for them for years… And then a traumatic brain injury…. This is an episode you do not want to miss. About Charles Morris: Charlie Morris was a full time live-in caregiver for his mother as she died from dementia and cancer, during the peak of the ...

2 months ago

42 minutes

Caregiver's Compass

The need for a national caregiving strategy in Canada, government-level advocacy and policy change and the hope on the horizon, with James Janeiro (Episode 129)

Canada is in dire need of a national caregiving strategy. And on today’s episode, we welcome James Janeiro, director of policy and government relations at the Canadian Centre for Caregiving Excellence (CCCE), to discuss what he and the CCCE are tirelessly working on to make this dream a reality. If you have ever wondered how policies come into effect and what it takes behind the scenes to make this happen (and how a Canadian caregiver strategy may be closer than ever before) listen now! About...

2 months ago

41 minutes

Caregiver's Compass

All about the Association of Frontal Temporal Degeneration (AFTD) including what they do, who they help, and where they hope to go next, with Esther Kane and Debbie Elkins (Episode 128)

In today’s episode, caregiver @debbieelkins , shares her story caring for her husband Chuck with frontotemporal degeneration (FTD), and discusses how @theaftd supported her during both her caregiving journey, and provided her a sense of purpose through volunteer and advocacy. AFTD’s director of support and education, Esther Kane, also joins us on today’s insightful episode to discuss all that AFTD provides currently, how they support caregivers and those with an FTD diagnosis, and what ...

2 months ago

44 minutes

Caregiver's Compass

Do I even need a power of attorney document and/or advanced directives? (Episode 127)

This is not commonly provided education so do not worry if this is all new or confusing! Most people are confused about powers of attorney, advanced directives and wills and why they can be extremely important/ what they can help with. In today’s episode, Stephanie discusses her perspectives on having a power of attorney document and what she has seen in her personal life and in hospital and private practice when it comes to powers of attorney and advanced directives. *please ...

3 months ago

12 minutes

Caregiver's Compass

People no longer visit the person I care for (Episode 126)

This is a common scenario- perhaps when there was an initial diagnosis, people showed up and offered support and over time they stopped coming as often or at all. Or maybe even at the time of diagnosis people did not visit. Whatever the case may be, if you are finding that no one visits, this episode is for you. Stephanie breaks down the most common reasons why people don’t visit, how you can communicate your wish for visitors with others and pave the way to continue visits ongoin...

3 months ago

10 minutes

Caregiver's Compass

The gaps in dementia and aging care in Canada, a defined dementia pathway and the path forward, with Dr. Saskia Sivananthan (Episode 125)

If you have ever faced navigating the healthcare system through a dementia diagnosis, you know the difficulties that can be faced. A confusing path to navigate, difficulties receiving diagnoses, often not knowing what comes next and staying up-to-date and confident in the way forward. In today’s episode, we are pleased to welcome Dr. Saskia Sivananthan who shares her knowledge about how we approach dementia in our healthcare system, her organization The Brainwell Institute, and how we w...

3 months ago

51 minutes

Caregiver's Compass

Strain and conflict we can experience in a romantic relationship while also caregiving for a parent, child, sibling or other family member, with Barry Jacobs and Julie Mayer (Episode 124)

Caring for someone can add complexity and conflict in a romantic relationship. Whether your partner disagrees with your decisions and beliefs regarding caregiving or whether they feel you are not present for them the way you once were, this is for any caregiver experiencing changes in a romantic relationship. Barry Jacobs and his wife Julie Mayer are clinical psychologists who specialize in family therapy and caregiving and provide their perspectives on different case examples in this enlight...

3 months ago

42 minutes

Caregiver's Compass

Talking all about ANGER and resentment in caregiving (Episode 123)

What leads to anger and resentment in caregiving and is there anything you can do to help prevent or mitigate these very intense, and sometimes overpowering, emotions? Today Stephanie talks about what can commonly trigger feelings of anger and resentment in caregiving and provides some realistic strategies to help you through these emotions while caring for someone else. If you are sick and tired of yelling and snapping at others and feeling out of control- this episode is for you. Visit us...

3 months ago

10 minutes

Caregiver's Compass

Guilt for not being able to do ‘it all’ while caring for multiple people and balancing other responsibilities (Episode 122)

Do you care for multiple family members or friends? Do you feel like you are not doing all you ultimately ‘should be’ doing given the limitations of caring for multiple people (plus potentially working and other responsibilities)? In today’s episode, Stephanie discusses this element of guilt and what happens & what you can do about being pulled in 3,4,5 or 90 different directions. Visit us on our website to see all that we offer for caregiver support: www.compassionincaregiving.com For...

4 months ago

7 minutes

Caregiver's Compass

From caring for her mom with frontotemporal dementia, to creating a film and advocating to normalize the caregiving experience, with Katie Prentiss (Episode 121)

After being thrust into the world of caregiving and caring for her mom with frontotemporal dementia (FTD), Katie Prentiss saw the need to share the caregiver experience with others, both those who could relate or those who did not understand and could learn. With her upcoming feature film, Wake up Maggie, Katie has made it her mission to bring caregiving to the forefront, inspiring other caregivers and raising awareness about the realities of caring for someone with FTD. About Katie P...

4 months ago

42 minutes