In this powerful episode of Boundless B, host Kai M Sorensen speaks with Alison Betty, longtime public policy expert and co-founder of alignco, about the critical role of advocacy in healthcare—particularly for individuals impacted by Hemophilia B.They explore how healthcare policy is shaped, why misinformation is a growing challenge for patients and providers alike, and how storytelling can cut through the noise to drive real change. Alison stresses that everyone has a story worth telling, and that even small efforts—like calling your representatives—can make a big difference.Whether you're navigating Medicare, Medicaid, the ACA or private insurance, this episode offers guidance, inspiration, and a call to action for anyone ready to engage in meaningful patient advocacy and community engagement.This episode is made in partnership with Balancing Life’s Issues. (https://balancinglifesissues.com/podcast-bli/)Additional Resources:* alignco (https://alignco.us/) || Alison Betty (https://alignco.us/person/alison-betty/)* Call your Rep, U.S. Capitol Switchboard: 202-224-3121* https://www.protectcoverage.org/members (https://www.protectcoverage.org/members)* The Coalition for Hemophilia B (https://www.hemob.org/)* Balancing Life's Issues (https://balancinglifesissues.com/podcast-bli/)Key Takeaways:* Advocacy is about using your voice—for yourself and others.* Everyone’s story matters, even if it’s not dramatic.* Misinformation in healthcare creates confusion; seek out multiple sources.* Policy changes often happen in small, impactful steps.* Personal stories create emotional connections that influence decision-makers.* Effective advocacy is a dialogue, not a monologue.* Staying informed on Medicare and Medicaid changes is critical.* Community support amplifies your voice and strengthens the message.