Join us in this series as we bring stories, discussions, and insights from influential voices in the hemophilia community directly to your favorite listening device. Please tune in to explore, learn, and connect, finding companionship in shared experiences as we strengthen our community through the power of audio.
Unlock the power of understanding hemophilia B.
Your Journey, Your Strength.
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Join us in this series as we bring stories, discussions, and insights from influential voices in the hemophilia community directly to your favorite listening device. Please tune in to explore, learn, and connect, finding companionship in shared experiences as we strengthen our community through the power of audio.
Unlock the power of understanding hemophilia B.
Your Journey, Your Strength.
Guest(s): Valerie Schneider, Christopher Maddix, Rick StarksEpisode Overview:This is part two of our special 2024 Volunteers of the Year series, celebrating the incredible individuals who help the Coalition for Hemophilia B thrive. In part one, we highlighted Colin, Fel, and Milinda—if you haven’t listened yet, be sure to check it out! Today, we turn the spotlight on three more inspiring community leaders: Valerie Schneider, Christopher Maddix, and Rick Starks.Valerie Schneider’s journey began when her son was diagnosed with severe Hemophilia B at birth. She has since dedicated herself to ensuring that no family navigating this condition feels alone.Christopher Maddix has been part of the Coalition since his teenage years, living with Hemophilia B and an inhibitor. Through volunteering, he found his voice—becoming an advocate and mentor for others on a similar path.Rick Starks has lived through decades of advancements in Hemophilia B treatment, but it wasn’t until his own daughter’s diagnosis that he fully embraced the community. Through his work with the Coalition and his expertise in Tai Chi and movement, he has helped many manage both the mental and physical challenges of living with Hemophilia B.Though their experiences are unique, Valerie, Christopher, and Rick share a common mission—giving back to the community that changed their lives and ensuring that others receive the support they need.This episode is made in partnership with Balancing Life’s Issues.Additional Resources:The Coalition for Hemophilia B (https://www.hemob.org/podcast)Balancing Life's Issues (https://balancinglifesissues.com/podcast-bli/)
Boundless B Podcast
Join us in this series as we bring stories, discussions, and insights from influential voices in the hemophilia community directly to your favorite listening device. Please tune in to explore, learn, and connect, finding companionship in shared experiences as we strengthen our community through the power of audio.
Unlock the power of understanding hemophilia B.
Your Journey, Your Strength.