BCG - A Rare & Unexpected Turn of Events

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Bladder Cancer Patient-to-Patient

Cindy Lawson DeVore

15 episodes

6 days ago

Those of us with bladder cancer, as well as our spouses or caregivers, know that our diagnosis can mean a lifelong journey of surveillance, surgeries, treatments, anxiety and self-care. This podcast is a source of information, understanding and support for those who are dealing with this highly recurrent disease. Diagnosed with bladder cancer in 2017, podcast host, Cindy Lawson, navigates the dizzying array of information available on the topic. She'll discuss her own experiences; those of other patients in varying stages of the disease, and offer viewpoints of medical experts.

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BCG - A Rare & Unexpected Turn of Events

Bladder Cancer Patient-to-Patient

13 minutes 9 seconds

2 years ago

BCG - A Rare & Unexpected Turn of Events

Greetings, fellow patients & survivors!

In my last episode, I talked about my experience with reactive arthritis, a somewhat rare and unexpected side effect of BCG. With regained confidence in my stride, I discussed how I'm managing this debilitating problem with both diet and half dose treatments. I've had clear scopes, and things have been on the uptick!

But just as I was coming into the final stretch of BCG and thought I had everything in hand, a proverbial "wrench" was thrown at me 100 mph, only one week after my last recorded episode. It was a rare and unexpected turn of events that I did not see coming, and it nearly cost me my vision.

If you're just starting BCG, or you've already been on BCG for a while, you'll want to take a listen to this episode. It was several weeks after my 15th treatment that the rare and unexpected immuno-response set in. A shocker, for sure.

Grab a cup of coffee, and settle in to learn a piece of information not often discussed on this journey we all share.

Wishing you all peace, health and happiness in the days ahead.

- Cindy

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Links:

Bilateral Uveitis After Intravesical BCG Immunotherapy for Bladder Carcinoma - ⁠https://bjo.bmj.com/content/86/6/706⁠

Complications of Intravesical BCG Immunotherapy for Bladder Cancer - https://pubs.rsna.org/doi/10.1148/rg.2019180014

Bilateral Panuveitis Following Intravesical BCG Immunotherapy for Bladder Carcinoma - https://pubmed.ncbi.nlm.nih.gov/20662661/

Managing Adverse Events of BCG Therapy - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4630183/

Clinical Spectrum of Complications Induced by Intravesical Immunotherapy BCG for Bladder Cancer - ⁠https://pubmed.ncbi.nlm.nih.gov/30984262/

My web site - ⁠https://bladdercancertalk.com⁠

Special thanks to ⁠ValleyGreenNaturals.com⁠ for sponsoring this podcast of Bladder Cancer Patient-to-Patient and for making their fantastic, clean-ingredient personal care products available at a discount to our listeners! Use Promo Code "Healthy" for 15% off your first order.

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Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE.

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