#BeyondHAE: Meet the HAEA's Youth Leadership Council's Newest Member Sully

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#BeyondHAE Youth Produced Podcast

US Hereditary Angioedema Association

72 episodes

2 days ago

The #BeyondHAE Podcast is a series dedicated to amplifying the voices of young people affected by Hereditary Angioedema and raising awareness about the disease. Hear from a different host each episode as they share stories of perseverance, activism, and support. We hope that you find strength in listening to stories from HAEA community members. Everyone has a story and this podcast series is just that, an opportunity for young people affected by HAE to share their unique stories with you! Visit www.haea.org for Hereditary Angioedema support, information and resources.

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#BeyondHAE: Meet the HAEA's Youth Leadership Council's Newest Member Sully

#BeyondHAE Youth Produced Podcast

10 minutes 41 seconds

10 months ago

#BeyondHAE: Meet the HAEA's Youth Leadership Council's Newest Member Sully

The #BeyondHAE youth-produced podcast kicks off January 2025 with an exciting series of episodes spotlighting the newest members of the Youth Leadership Council who joined in 2024. This episode features Sully, a dedicated caregiver to his mother who has HAE, as he shares his unique perspective and experiences in the HAE community. With new episodes releasing weekly throughout January and February, listeners will get to know these inspiring young leaders and discover what drives their passion for HAE advocacy.

This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.

Thank you to our sponsor, KalVista.