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Beyond the Diagnosis
Histiocytosis Association
85 episodes
5 days ago
The Beyond the Diagnosis podcast was created by the Histiocytosis Association to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help them on their histio journey. The podcast provides an additional platform by which listeners can consume information while on the go or if unable to remain in front of a computer for an extended period of time.
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All content for Beyond the Diagnosis is the property of Histiocytosis Association and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
The Beyond the Diagnosis podcast was created by the Histiocytosis Association to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help them on their histio journey. The podcast provides an additional platform by which listeners can consume information while on the go or if unable to remain in front of a computer for an extended period of time.
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Health & Fitness
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Episode 070 - Navigating Social Security & Disability Benefits for Children: Compassionate Allowance Expansion for Histiocytosis
Beyond the Diagnosis
32 minutes 48 seconds
1 year ago
Episode 070 - Navigating Social Security & Disability Benefits for Children: Compassionate Allowance Expansion for Histiocytosis

Welcome to episode 070 of the Beyond the Diagnosis podcast.  In this episode, Deanna Fournier guest hosts interviews with Sandra Lamb and Jane Johnson, two experienced disability representatives, about navigating the Social Security Administration (SSA) for individuals with histiocytic disorders. Part 2 of a 2-part series, this episode focuses specifically on children. They explain the eligibility criteria for applying for Social Security benefits, the role of disability representatives, and the importance of maintaining records. They also address the process of appealing denials and provide contact information for those seeking assistance.

 

Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at podcast@histio.org. 

Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback!

 

Be sure to subscribe so you can be notified the moment a new episode of Beyond the Diagnosis is released.

 

We would love it if you would consider supporting this podcast financially so we can continue to bring you relevant and timely information while on your histio journey.  To learn more visit https://podcasters.spotify.com/pod/show/histio/support

  

Resources mentioned in the podcast:

·       National Association of Disability Representatives

·       SSA Office Locator

·      Should I Quit My Job Before Applying for Disability?

·      Social Security Eligibility

·       Contact Jane at Foothills Disability – 1-828-394-9657 or jane@foothillsdisability.com
  Follow the Histiocytosis Association on social media:

  • Facebook: https://www.facebook.com/histio
  • Twitter: @histiocytosis
  • Instagram: histiocytosis_association
  • YouTube: https://www.youtube.com/@Histiocytosis

  Music: “Heroes” by Noah Smith

Beyond the Diagnosis
The Beyond the Diagnosis podcast was created by the Histiocytosis Association to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help them on their histio journey. The podcast provides an additional platform by which listeners can consume information while on the go or if unable to remain in front of a computer for an extended period of time.