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Beyond the Diagnosis
Histiocytosis Association
85 episodes
1 day ago
The Beyond the Diagnosis podcast was created by the Histiocytosis Association to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help them on their histio journey. The podcast provides an additional platform by which listeners can consume information while on the go or if unable to remain in front of a computer for an extended period of time.
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Health & Fitness
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All content for Beyond the Diagnosis is the property of Histiocytosis Association and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
The Beyond the Diagnosis podcast was created by the Histiocytosis Association to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help them on their histio journey. The podcast provides an additional platform by which listeners can consume information while on the go or if unable to remain in front of a computer for an extended period of time.
Show more...
Health & Fitness
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Episode 065 - AVP-Deficiency Explained: Understanding and Managing a Rare Condition
Beyond the Diagnosis
1 hour 2 minutes 35 seconds
1 year ago
Episode 065 - AVP-Deficiency Explained: Understanding and Managing a Rare Condition

Welcome to Episode 065 of the Beyond the Diagnosis Podcast. In this episode we’re talking with Pat Gildroy, lead administrator of the Facebook Group, “Got Arginine VasoPressin Deficiency?” about the resources, symptoms, tests, and the patient experience for those living with Arginine Vasopressin Deficiency, formerly known as Diabetes Insipidus. 

Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at podcast@histio.org. 

Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback!

 

Be sure to subscribe so you can be notified the moment a new episode of Beyond the Diagnosis is released.

 

We would love it if you would consider supporting this podcast financially so we can continue to bring you relevant and timely information while on your histio journey.  To learn more visit https://podcasters.spotify.com/pod/show/histio/support

 

Resources mentioned in the podcast:

  • App for tracking fluids: IUFLOW
  • UK Pituitary Foundation
  • World Alliance of Pituitary Organizations (WAPO)
  • Raymond A. Wood Foundation
  • Facebook Group: Got Arginine Vasopressin Deficiency?

·       Follow the Histiocytosis Association on social media:

  • Facebook: https://www.facebook.com/histio
  • Twitter: @histiocytosis
  • Instagram: histiocytosis_association
  • YouTube: https://www.youtube.com/@Histiocytosis Music: “Heroes” by Noah Smith

Beyond the Diagnosis
The Beyond the Diagnosis podcast was created by the Histiocytosis Association to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help them on their histio journey. The podcast provides an additional platform by which listeners can consume information while on the go or if unable to remain in front of a computer for an extended period of time.