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Beyond the Count
ITP Australia and New Zealand
11 episodes
1 week ago
In this episode of Beyond the Count, we’re joined by Caroline Kruse, President and CEO of PDSA and Co-founder and Chair of the International ITP Alliance. Caroline shares how the Alliance began, why global collaboration matters in rare diseases, and how bringing together patient organisations from around the world is helping to raise awareness, share resources and strengthen support for people with ITP everywhere. We also examine some of the Alliance’s major milestones to date, includin...
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Health & Fitness
Business,
Society & Culture,
Non-Profit
RSS
All content for Beyond the Count is the property of ITP Australia and New Zealand and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
In this episode of Beyond the Count, we’re joined by Caroline Kruse, President and CEO of PDSA and Co-founder and Chair of the International ITP Alliance. Caroline shares how the Alliance began, why global collaboration matters in rare diseases, and how bringing together patient organisations from around the world is helping to raise awareness, share resources and strengthen support for people with ITP everywhere. We also examine some of the Alliance’s major milestones to date, includin...
Show more...
Health & Fitness
Business,
Society & Culture,
Non-Profit
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ITP & Me: Creating a book for Teens, by Teens
Beyond the Count
30 minutes
2 months ago
ITP & Me: Creating a book for Teens, by Teens
Behind the scenes of a project giving teenagers a voice in their ITP journey. Being diagnosed with ITP as a teenager can feel overwhelming, and finding the right information at the right time makes a big difference. In this episode, Danielle speaks with Professor Nichola Cooper, Dr Alice Hart, and Mervyn Morgan about ITP and Me: A Teen Guide to Living with ITP. They share how the book was developed with teens, for teens, why age-appropriate resources matter, and how hearing directly from youn...
Beyond the Count
In this episode of Beyond the Count, we’re joined by Caroline Kruse, President and CEO of PDSA and Co-founder and Chair of the International ITP Alliance. Caroline shares how the Alliance began, why global collaboration matters in rare diseases, and how bringing together patient organisations from around the world is helping to raise awareness, share resources and strengthen support for people with ITP everywhere. We also examine some of the Alliance’s major milestones to date, includin...