Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should know YOU ARE NOT ALONE! At the Bendy Bodies Podcast, we understand.
Each week, join Dr. Linda Bluestein (The Hypermobility MD) as she pulls back the curtain on how to prevent injury and unnecessary suffering in “double-jointed” individuals seeking a more comfortable life in their unique, complex “bendy bodies.” When you tune in, you’re engaging in more than a podcast. Both on-air and online, you’re joining a supportive community where patients, caregivers, and healthcare professionals trade insights, life hacks, and inspiring stories to embrace our Bendy Bodies journey together!
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Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should know YOU ARE NOT ALONE! At the Bendy Bodies Podcast, we understand.
Each week, join Dr. Linda Bluestein (The Hypermobility MD) as she pulls back the curtain on how to prevent injury and unnecessary suffering in “double-jointed” individuals seeking a more comfortable life in their unique, complex “bendy bodies.” When you tune in, you’re engaging in more than a podcast. Both on-air and online, you’re joining a supportive community where patients, caregivers, and healthcare professionals trade insights, life hacks, and inspiring stories to embrace our Bendy Bodies journey together!
Gluten, MTHFR, Mast Cells, and More | Office Hours (Ep 155)
Bendy Bodies with Dr. Linda Bluestein
54 minutes
3 months ago
Gluten, MTHFR, Mast Cells, and More | Office Hours (Ep 155)
In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles a series of complex listener questions originally submitted by clinicians after her guest appearance on The Curbsiders internal medicine podcast. From the flaws in the EDS diagnostic criteria to the misunderstood role of MTHFR gene (methylenetetrahydrofolate reductase), SVT (supraventricular tachycardia), celiac disease, and mast cell medications, she offers guidance, clarity, and practical advice. She also digs into how to find a provider who actually understands dysautonomia and shares personal hacks that empower patients to ask smarter questions during appointments. This episode is a toolkit for patients and providers alike, packed with real-world insights you won’t want to miss.
Takeaways:
Why Beighton scoring alone doesn’t cut it for diagnosing EDS
The truth about MTHFR variants and their link to EDS
The overlap between SVT, POTS, and when to worry
What to ask your doctor if you’re not sure they "get" dysautonomia
A breakdown of meds like LDN, ketotifen, and cromolyn—and who they help most
References:
The Curbsiders Podcast EP 480 - Hypermobility with Dr. Linda Bluestein: https://thecurbsiders.com/curbsiders-podcast/480-hypermobility-with-dr-linda-bluestein
https://pubmed.ncbi.nlm.nih.gov/38523329/?utm_source=chatgpt.com
hEDS Diagnostic Criteria Checklist
Red Flags Guide (credit: Clair A. Francomano, MD): https://www.bendybodiespodcast.com/p/redflags/
Hope for Hypermobility
Article: https://www.nursingcenter.com/cearticle?an=00587875-202304000-00001&Journal_ID=3402523&Issue_ID=6649307
Substack: https://open.substack.com/pub/hypermobilitymd/p/navigating-treatment-for-hedshsd
Find the episode transcript here
Bendy Bodies EP 133: How Internists Think About Complex Illness with Dr. Matthew Watto: https://www.bendybodiespodcast.com/how-internists-think-about-complex-illness-with-dr-matthew-watto-ben-133/
Bendy Bodies EP 139: Hidden Histamine Threats with Dr. Theoharis Theoharides: https://www.bendybodiespodcast.com/hidden-histamine-threats-with-dr-theoharis-theoharides-ep-139/
Cromolyn Douche Article: https://pubmed.ncbi.nlm.nih.gov/30964355/
https://www.bendybodiespodcast.com/videos/connective-tissue-disorders-and-lipedema-with-karen-herbst-md/
LDN episode: https://www.bendybodiespodcast.com/lower-your-eds-pain-office-hours-ep-138/
LDN resource: https://www.bendybodiespodcast.com/p/low-dose-naltrexone-ldn-for-chronic-pain-eds/
Want more Dr. Linda Bluestein, MD?
Website: https://www.hypermobilitymd.com/.
YouTube: youtube.com/@bendybodiespodcast
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X: https://twitter.com/BluesteinLinda
LinkedIn: https://www.linkedin.com/in/hypermobilitymd/
Newsletter: https://hypermobilitymd.substack.com/
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Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
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Bendy Bodies with Dr. Linda Bluestein
Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should know YOU ARE NOT ALONE! At the Bendy Bodies Podcast, we understand.
Each week, join Dr. Linda Bluestein (The Hypermobility MD) as she pulls back the curtain on how to prevent injury and unnecessary suffering in “double-jointed” individuals seeking a more comfortable life in their unique, complex “bendy bodies.” When you tune in, you’re engaging in more than a podcast. Both on-air and online, you’re joining a supportive community where patients, caregivers, and healthcare professionals trade insights, life hacks, and inspiring stories to embrace our Bendy Bodies journey together!
