Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should know YOU ARE NOT ALONE! At the Bendy Bodies Podcast, we understand.
Each week, join Dr. Linda Bluestein (The Hypermobility MD) as she pulls back the curtain on how to prevent injury and unnecessary suffering in “double-jointed” individuals seeking a more comfortable life in their unique, complex “bendy bodies.” When you tune in, you’re engaging in more than a podcast. Both on-air and online, you’re joining a supportive community where patients, caregivers, and healthcare professionals trade insights, life hacks, and inspiring stories to embrace our Bendy Bodies journey together!
All content for Bendy Bodies with Dr. Linda Bluestein is the property of Dr. Linda Bluestein and is served directly from their servers
with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should know YOU ARE NOT ALONE! At the Bendy Bodies Podcast, we understand.
Each week, join Dr. Linda Bluestein (The Hypermobility MD) as she pulls back the curtain on how to prevent injury and unnecessary suffering in “double-jointed” individuals seeking a more comfortable life in their unique, complex “bendy bodies.” When you tune in, you’re engaging in more than a podcast. Both on-air and online, you’re joining a supportive community where patients, caregivers, and healthcare professionals trade insights, life hacks, and inspiring stories to embrace our Bendy Bodies journey together!
From Palliative Care to Purpose: The Tilly Rose Story (Ep 168)
Bendy Bodies with Dr. Linda Bluestein
1 hour 21 minutes
2 weeks ago
From Palliative Care to Purpose: The Tilly Rose Story (Ep 168)
In this emotionally charged episode, Dr. Linda Bluestein talks with Tilly Rose, the founder of That Oxford Girl and the author of Be Patient, about what it’s like to face palliative care as a young adult and come out the other side fighting for change. They explore how Tilly transformed her private pain into public advocacy, why chronic illness is so often misunderstood in young people, and what happens when you rewrite your identity in the face of a diagnosis. This is a story of resilience, reinvention, and the radical act of showing up when the world doesn’t know what to do with you.
Takeaways
What happens when a diagnosis rewrites your life story and how can you reclaim the pen?
Tilly shares the moment that inspired Be Patient and the raw honesty behind turning medical trauma into a memoir.
Learn how she balanced life at Oxford with hospital stays and how those parallel worlds reshaped her idea of “achievement.”
Why do so many young people with chronic illness feel unseen and what does Tilly believe needs to change?
Discover how That Oxford Girl evolved from a quiet act of self-expression into a global movement of validation, empathy, and empowerment.
Tilly reveals why sharing her story became both a lifeline and a catalyst for a more compassionate future.
Find the episode transcript here.
References:
Order “Be Patient” by Tilly Rose (free international shipping): https://blackwells.co.uk/bookshop/product/Be-Patient-by-Tilly-Rose/9781780726229
Vascular Compression Syndromes: https://scholbach.de/wissenschaft/deutsch-ultraschalldiagnostik/deutsch-gefaskompressionen#gsc.tab=0
Greater National Advocates: https://gnanow.org/
Surgical treatment of abdominal compression syndromes: The significance of hypermobility-related disorders: https://pubmed.ncbi.nlm.nih.gov/34747562/
Want more Tilly Rose?
https://www.instagram.com/thattillyrose/?hl=en
https://www.facebook.com/people/Tilly-Rose-Author/61575923876707/?_rdr
https://www.linkedin.com/in/tillyrose/?originalSubdomain=uk
https://www.tiktok.com/@thattillyrose?lang=en
Want more Dr. Linda Bluestein, MD?
Website: https://www.hypermobilitymd.com/
YouTube: https://www.youtube.com/@bendybodiespodcast
Instagram: https://www.instagram.com/hypermobilitymd/
Facebook: https://www.facebook.com/BendyBodiesPodcast
X: https://twitter.com/BluesteinLinda
LinkedIn: https://www.linkedin.com/in/hypermobilitymd/
Newsletter: https://hypermobilitymd.substack.com/
Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd
Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.
YOUR bendy body is our highest priority!
Learn more about Human Content at http://www.human-content.com
Podcast Advertising/Business Inquiries: sales@human-content.com
Part of the Human Content Podcast Network
FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links
Learn more about your ad choices. Visit megaphone.fm/adchoices
Bendy Bodies with Dr. Linda Bluestein
Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should know YOU ARE NOT ALONE! At the Bendy Bodies Podcast, we understand.
Each week, join Dr. Linda Bluestein (The Hypermobility MD) as she pulls back the curtain on how to prevent injury and unnecessary suffering in “double-jointed” individuals seeking a more comfortable life in their unique, complex “bendy bodies.” When you tune in, you’re engaging in more than a podcast. Both on-air and online, you’re joining a supportive community where patients, caregivers, and healthcare professionals trade insights, life hacks, and inspiring stories to embrace our Bendy Bodies journey together!
