Ep 98. What Are You Telling Families Who Get A Trisomy 18 Diagnosis?

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Being Rare Podcast

Sarita Edwards

111 episodes

3 days ago

Hosted by rare disease advocate Sarita Edwards, Being Rare is a talk radio–style podcast that explores the issues shaping the rare disease and health equity landscape. Each episode dives into real conversations at the intersection of policy, practice, and patient experience. Through bold, unscripted discussions with thought leaders, clinicians, advocates, and changemakers, we'll talk about health equity, access to care, innovation, policy, community, and collaboration. Follow us on social media @beingrarepodcast. Got questions about the show? Email us - podcast@theewefoundation.org!

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All content for Being Rare Podcast is the property of Sarita Edwards and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Hosted by rare disease advocate Sarita Edwards, Being Rare is a talk radio–style podcast that explores the issues shaping the rare disease and health equity landscape. Each episode dives into real conversations at the intersection of policy, practice, and patient experience. Through bold, unscripted discussions with thought leaders, clinicians, advocates, and changemakers, we'll talk about health equity, access to care, innovation, policy, community, and collaboration. Follow us on social media @beingrarepodcast. Got questions about the show? Email us - podcast@theewefoundation.org!

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Ep 98. What Are You Telling Families Who Get A Trisomy 18 Diagnosis?

Being Rare Podcast

24 minutes 9 seconds

1 year ago

Ep 98. What Are You Telling Families Who Get A Trisomy 18 Diagnosis?

There has been a lot of misinformation circulating about Trisomy 18 and its impact on unborn babies and pregnant moms. In this episode, Sarita challenges the fatal narrative and shares statistics about pregnancy-related deaths.

Sarita also sits down with Kira Dineen, prenatal genetic counselor and genetics podcaster at DNA Today to discuss the information being shared with families who receive a diagnosis of Trisomy 18 for their unborn child.

Sarita and Kira also talk about Kira's podcast and how she got started.

Tune in to DNA Today, episode 277 to hear Sarita on Kira's show!

Don't forget to hit that subscribe button to follow the Being Rare Podcast and follow us on social media @beingrarepodcast!

Connect with Sarita Edwards, host of the show @saritaedwards