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Being Rare Podcast
Sarita Edwards
111 episodes
3 days ago
Hosted by rare disease advocate Sarita Edwards, Being Rare is a talk radio–style podcast that explores the issues shaping the rare disease and health equity landscape. Each episode dives into real conversations at the intersection of policy, practice, and patient experience. Through bold, unscripted discussions with thought leaders, clinicians, advocates, and changemakers, we'll talk about health equity, access to care, innovation, policy, community, and collaboration. Follow us on social media @beingrarepodcast. Got questions about the show? Email us - podcast@theewefoundation.org!
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Non-Profit
Business
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All content for Being Rare Podcast is the property of Sarita Edwards and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Hosted by rare disease advocate Sarita Edwards, Being Rare is a talk radio–style podcast that explores the issues shaping the rare disease and health equity landscape. Each episode dives into real conversations at the intersection of policy, practice, and patient experience. Through bold, unscripted discussions with thought leaders, clinicians, advocates, and changemakers, we'll talk about health equity, access to care, innovation, policy, community, and collaboration. Follow us on social media @beingrarepodcast. Got questions about the show? Email us - podcast@theewefoundation.org!
Show more...
Non-Profit
Business
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Ep 93. Overwhelmed by Grief #podcast #grief #raredisease #trisomy18
Being Rare Podcast
19 minutes 52 seconds
2 years ago
Ep 93. Overwhelmed by Grief #podcast #grief #raredisease #trisomy18
In this Being Rare Podcast episode Sarita talks about grief and how it can unexpectedly overwhelm you.
Being Rare Podcast
Hosted by rare disease advocate Sarita Edwards, Being Rare is a talk radio–style podcast that explores the issues shaping the rare disease and health equity landscape. Each episode dives into real conversations at the intersection of policy, practice, and patient experience. Through bold, unscripted discussions with thought leaders, clinicians, advocates, and changemakers, we'll talk about health equity, access to care, innovation, policy, community, and collaboration. Follow us on social media @beingrarepodcast. Got questions about the show? Email us - podcast@theewefoundation.org!