Hosted by rare disease advocate Sarita Edwards, Being Rare is a talk radio–style podcast that explores the issues shaping the rare disease and health equity landscape. Each episode dives into real conversations at the intersection of policy, practice, and patient experience. Through bold, unscripted discussions with thought leaders, clinicians, advocates, and changemakers, we'll talk about health equity, access to care, innovation, policy, community, and collaboration.
Follow us on social media @beingrarepodcast. Got questions about the show? Email us - podcast@theewefoundation.org!
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Hosted by rare disease advocate Sarita Edwards, Being Rare is a talk radio–style podcast that explores the issues shaping the rare disease and health equity landscape. Each episode dives into real conversations at the intersection of policy, practice, and patient experience. Through bold, unscripted discussions with thought leaders, clinicians, advocates, and changemakers, we'll talk about health equity, access to care, innovation, policy, community, and collaboration.
Follow us on social media @beingrarepodcast. Got questions about the show? Email us - podcast@theewefoundation.org!
Ep 91. Let's talk about Newborn Screening in Alabama
Being Rare Podcast
48 minutes 39 seconds
2 years ago
Ep 91. Let's talk about Newborn Screening in Alabama
In this episode Sarita is joined by Swapna Kakani, Jasmine Hightower, and briefly by Brooke Thomas to talk about newborn screening, state advocacy, and the impact NBS has on babies and their parents.
*Due to external technical difficulties Brooke's audio and video did not record to this episode. There is a brief moment of silence.
Being Rare Podcast
Hosted by rare disease advocate Sarita Edwards, Being Rare is a talk radio–style podcast that explores the issues shaping the rare disease and health equity landscape. Each episode dives into real conversations at the intersection of policy, practice, and patient experience. Through bold, unscripted discussions with thought leaders, clinicians, advocates, and changemakers, we'll talk about health equity, access to care, innovation, policy, community, and collaboration.
Follow us on social media @beingrarepodcast. Got questions about the show? Email us - podcast@theewefoundation.org!
