Hosted by rare disease advocate Sarita Edwards, Being Rare is a talk radio–style podcast that explores the issues shaping the rare disease and health equity landscape. Each episode dives into real conversations at the intersection of policy, practice, and patient experience. Through bold, unscripted discussions with thought leaders, clinicians, advocates, and changemakers, we'll talk about health equity, access to care, innovation, policy, community, and collaboration.
Follow us on social media @beingrarepodcast. Got questions about the show? Email us - podcast@theewefoundation.org!
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Hosted by rare disease advocate Sarita Edwards, Being Rare is a talk radio–style podcast that explores the issues shaping the rare disease and health equity landscape. Each episode dives into real conversations at the intersection of policy, practice, and patient experience. Through bold, unscripted discussions with thought leaders, clinicians, advocates, and changemakers, we'll talk about health equity, access to care, innovation, policy, community, and collaboration.
Follow us on social media @beingrarepodcast. Got questions about the show? Email us - podcast@theewefoundation.org!
Ep 90. Who's responsible for providing parents newborn screening information? #podcast
Being Rare Podcast
8 minutes 41 seconds
2 years ago
Ep 90. Who's responsible for providing parents newborn screening information? #podcast
Who's responsible for providing parents newborn screening information and when should they do it? This episode of the Being Rare Podcast is about the importance of parent education with regard to newborn screening and what it means for newborns and their parents.
Being Rare Podcast
Hosted by rare disease advocate Sarita Edwards, Being Rare is a talk radio–style podcast that explores the issues shaping the rare disease and health equity landscape. Each episode dives into real conversations at the intersection of policy, practice, and patient experience. Through bold, unscripted discussions with thought leaders, clinicians, advocates, and changemakers, we'll talk about health equity, access to care, innovation, policy, community, and collaboration.
Follow us on social media @beingrarepodcast. Got questions about the show? Email us - podcast@theewefoundation.org!
