In this episode of BARE IT ALL Coffee Talk, we welcome Katie Sclafani, Licensed Clinical Social Worker and Certified Clinical Transplant Social Worker with the Sala Institute for Child & Family Centered Care at NYU Langone’s Hassenfeld Children’s Hospital.
Katie walks us through the invaluable role social workers play in the pediatric liver disease journey — from diagnosis through transplant and every step in between. As part of the care team, social workers help ensure families are informed, connected to resources, and supported as they navigate complex medical decisions and transitions.
Whether you're a caregiver, healthcare provider, or advocate, this conversation offers an important look into how social workers guide and empower families during some of their most challenging moments.
Links for organizations mentioned.
If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, please don't hesitate to contact us at contactus@bareinc.org. Let's amplify our voices and foster understanding together."
Connect with us:
If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association, or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant, and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or visit www.cota.org/getstarted to learn more about how they can help.
Music by Magnetic_Trailer from Pixabay
Listen now on Spotify, Apple Podcasts, or wherever you get your shows.#BiliaryAtresia #KasaiProcedure #MedicalJourney #Parenting #BAREItAll #CoffeeTalk
