Chiranth Achar discussed the rare disease landscape in India with Prasanna Shirol, Co-founder & Director of the Organization for Rare Diseases India.

The ORDI would like to make listeners aware of the significant work done by them in aid of rare disease patient in India. This includes India’s First Rare Disease Helpline: (+91) 8892 555 000, the Savemylife patient support program, Racefor7 a symbolic 7,000 meter race to raise rare disease awareness and drive outreach across India to connect all stakeholders, and significant collaboration with international bodies such as Rare Diseases International.