In this heartfelt interview with Sarah Long, we learn abouther son Oscar, a young boy full of life and promise. Oscar was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), a rare and devastating brain tumour. His initial symptoms— a tilted head and memory issues—marked the beginning of afight no family should ever have to endure. Throughout his battle, the family focused on creating joyful memories, cherishing every precious moment together. But as thedays passed, palliative care became crucial, offering comfort in Oscar’s final moments. His parents channelled their grief into a mission to raise awareness, funding, and hope for future research. They organized events, rallied communities, and even placed tiles at the Brain Tumour Research "Centresof Excellence" in Oscar’s honour—symbols of love, loss, and the desire to make a difference. Their story underscores a heartbreaking reality: the severe shortfall in government funding for brain tumour research, especially for rareconditions like DIPG. In this interview, Sarah shares how Oscar’s legacy inspires action and how the family is determined to ensure that no other child faces what Oscar did without hope for a cure.

DISCLAIMERAny of the sites under Claire Bullimore or Aunty M Brain Tumours is not intended to provide and does not constitute medical, legal, or other professional advice. The content on Aunty M Brain Tumours is designed to support, not replace, medical or psychiatric treatment.