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Angelman Syndrome Foundation Podcast
Angelman Syndrome Foundation
36 episodes
6 days ago
Share Your Feedback or Recommend New Topics In this episode, Amanda sits down with Abby Zachritz, better known as Advocacy Abby, the Director of Family Advocacy at Support Now and creator of the Connect grants database. Abby shares how her personal journey as a mom navigating the disability world inspired her to help other families access financial assistance for therapies, adaptive equipment, and more. Together, they discuss how Support Now’s all-in-one platform simplifies fundraising and co...
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Health & Fitness
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All content for Angelman Syndrome Foundation Podcast is the property of Angelman Syndrome Foundation and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.
Share Your Feedback or Recommend New Topics In this episode, Amanda sits down with Abby Zachritz, better known as Advocacy Abby, the Director of Family Advocacy at Support Now and creator of the Connect grants database. Abby shares how her personal journey as a mom navigating the disability world inspired her to help other families access financial assistance for therapies, adaptive equipment, and more. Together, they discuss how Support Now’s all-in-one platform simplifies fundraising and co...
Show more...
Health & Fitness
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Epilepsy in Angelman Syndrome
Angelman Syndrome Foundation Podcast
59 minutes
11 months ago
Epilepsy in Angelman Syndrome
Share Your Feedback or Recommend New Topics In this episode, Dr. Mark Nespeca lays the groundwork by identifying and explaining the types of seizures commonly seen in individuals with Angelman syndrome. Dr. Ron Thibert then delves into treatment options and discusses Non-Convulsive Status Epilepticus (NCSE). Dr. Robert Carson wraps up the episode with crucial insights on seizure preparedness and his groundbreaking research on NEM / tremors. You'll gain valuable knowledge and strategies to man...
Angelman Syndrome Foundation Podcast
Share Your Feedback or Recommend New Topics In this episode, Amanda sits down with Abby Zachritz, better known as Advocacy Abby, the Director of Family Advocacy at Support Now and creator of the Connect grants database. Abby shares how her personal journey as a mom navigating the disability world inspired her to help other families access financial assistance for therapies, adaptive equipment, and more. Together, they discuss how Support Now’s all-in-one platform simplifies fundraising and co...