In this episode, Prof. Dr. Torsten Zuberbier (GA²LEN) welcomes Dr. Sophia Neisinger to discuss CRUSE, a digital health tool for chronic spontaneous urticaria (CSU). CRUSE is a free, globally available self-evaluation app that helps patients track their symptoms and provides valuable research data to improve urticaria care.
They discuss:
📊 How CRUSE helps patients track their CSU symptoms daily.
🔬 How anonymized CRUSE data is shaping global urticaria research.
📢 The importance of continuous data input—even on good days.
💊 Treatment disparities worldwide & the fight against long-term corticosteroid use.
📡 Upcoming developments, including smartwatch & wearable integration.
Join us as we explore how CRUSE is making a difference for patients, physicians, and researchers worldwide!
Key Learnings from the Episode:
CRUSE is a free, validated self-evaluation app for CSU patients, helping track their disease and treatment effectiveness.
Daily symptom tracking is crucial, even when patients feel well, to improve research insights.
CRUSE data reveals treatment disparities worldwide, with some countries lacking access to second-line treatments.
Systemic corticosteroids are still overused, despite their severe side effects, highlighting the need for better awareness and alternative treatments.
CRUSE allows patients to share their symptom data with their physicians, improving personalized treatment decisions.
The app is continuously evolving, with new features like improved reports and future integration with smartwatches and wearables.
CRUSE is expanding globally, with North Macedonia being the next country to adopt the platform.
Physicians and researchers can use CRUSE for studies, making it a valuable tool for small-scale trials and real-world data collection.
Chapters
00:00 Introduction to CRUISE and Its Purpose
03:18 Data Collection and Patient Engagement
05:47 Global Insights from CRUISE Data
08:52 Future Developments and Enhancements
11:35 Awareness and Advocacy for Urticaria
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