In September 2025, around 30 UK patients (and their families) met in London for a UK Patient Engagement Day. I set up the first UK Acromegaly Meetup in 2017 and we did them again in 2018 and 2019. Then COVID hit and we hadn't done one since. Thanks to The Pituitary Foundation and Camurus, we had the resources and support to develop a patient engagment day. And what a day it was. As always, the focus is on those living with acromegaly to have a chance to meet each other, share experience...
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In September 2025, around 30 UK patients (and their families) met in London for a UK Patient Engagement Day. I set up the first UK Acromegaly Meetup in 2017 and we did them again in 2018 and 2019. Then COVID hit and we hadn't done one since. Thanks to The Pituitary Foundation and Camurus, we had the resources and support to develop a patient engagment day. And what a day it was. As always, the focus is on those living with acromegaly to have a chance to meet each other, share experience...
In Episode 24 of AcroTales we meet Cas from Nevada in the USA. Cas's story really demonstrates the challenges faced when undergoing the 'diagnostic odyssey' in a search for answers. After experiencing a range of symptoms, Cas was finally diagnosed in 2019 - just before the COVID pandemic swept the globe. Yet Cas's resilience, positivity and humble nature means she has not let this condition define her.
AcroTales
In September 2025, around 30 UK patients (and their families) met in London for a UK Patient Engagement Day. I set up the first UK Acromegaly Meetup in 2017 and we did them again in 2018 and 2019. Then COVID hit and we hadn't done one since. Thanks to The Pituitary Foundation and Camurus, we had the resources and support to develop a patient engagment day. And what a day it was. As always, the focus is on those living with acromegaly to have a chance to meet each other, share experience...
