In September 2025, around 30 UK patients (and their families) met in London for a UK Patient Engagement Day. I set up the first UK Acromegaly Meetup in 2017 and we did them again in 2018 and 2019. Then COVID hit and we hadn't done one since. Thanks to The Pituitary Foundation and Camurus, we had the resources and support to develop a patient engagment day. And what a day it was. As always, the focus is on those living with acromegaly to have a chance to meet each other, share experience...
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In September 2025, around 30 UK patients (and their families) met in London for a UK Patient Engagement Day. I set up the first UK Acromegaly Meetup in 2017 and we did them again in 2018 and 2019. Then COVID hit and we hadn't done one since. Thanks to The Pituitary Foundation and Camurus, we had the resources and support to develop a patient engagment day. And what a day it was. As always, the focus is on those living with acromegaly to have a chance to meet each other, share experience...
In Episode 20 of AcroTales we speak to Thomas from Switzerland. Thomas was diagnosed only a few months go and recently had surgery, so this is clearly very new and raw for him. He talks about the symptoms, diagnosis, his girlfriends desire to know everything about Acromegaly and how his approach was not quite the same.
AcroTales
In September 2025, around 30 UK patients (and their families) met in London for a UK Patient Engagement Day. I set up the first UK Acromegaly Meetup in 2017 and we did them again in 2018 and 2019. Then COVID hit and we hadn't done one since. Thanks to The Pituitary Foundation and Camurus, we had the resources and support to develop a patient engagment day. And what a day it was. As always, the focus is on those living with acromegaly to have a chance to meet each other, share experience...
