In September 2025, around 30 UK patients (and their families) met in London for a UK Patient Engagement Day. I set up the first UK Acromegaly Meetup in 2017 and we did them again in 2018 and 2019. Then COVID hit and we hadn't done one since. Thanks to The Pituitary Foundation and Camurus, we had the resources and support to develop a patient engagment day. And what a day it was. As always, the focus is on those living with acromegaly to have a chance to meet each other, share experience...
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In September 2025, around 30 UK patients (and their families) met in London for a UK Patient Engagement Day. I set up the first UK Acromegaly Meetup in 2017 and we did them again in 2018 and 2019. Then COVID hit and we hadn't done one since. Thanks to The Pituitary Foundation and Camurus, we had the resources and support to develop a patient engagment day. And what a day it was. As always, the focus is on those living with acromegaly to have a chance to meet each other, share experience...
In this episode of AcroTales, we hear from Richard in the UK. Richard was diagnosed in his mid-60s and talks about the diagnostic journey he underwent to reach his diagnosis and the impact it's had on his life, all told with great humour.
AcroTales
In September 2025, around 30 UK patients (and their families) met in London for a UK Patient Engagement Day. I set up the first UK Acromegaly Meetup in 2017 and we did them again in 2018 and 2019. Then COVID hit and we hadn't done one since. Thanks to The Pituitary Foundation and Camurus, we had the resources and support to develop a patient engagment day. And what a day it was. As always, the focus is on those living with acromegaly to have a chance to meet each other, share experience...
