Losing a Son to Rare Disease: Parental Isolation & Grief

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A Place of Yes | A Grief Podcast

Jake's Help From Heaven

85 episodes

6 days ago

Grief is messy, complicated, and deeply personal — but you don’t have to go through it alone. On A Place of Yes, host Heather Straughter creates a safe, unfiltered space to talk about the realities of loss. Each episode dives into the tears, the laughter, the WTF moments, and the hope — all of it. Through candid personal stories and expert insights, Heather explores the pain, resilience, and unexpected moments of light that come with grieving.

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Personal Journals

Society & Culture

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Losing a Son to Rare Disease: Parental Isolation & Grief

A Place of Yes | A Grief Podcast

21 minutes 43 seconds

5 months ago

Losing a Son to Rare Disease: Parental Isolation & Grief

Dr. Al Freedman knows firsthand what it’s like to be a parent in the rare disease world—his son Jack lived with Spinal Muscular Atrophy for 26 years. In this conversation, he joins Heather to talk about the deep grief and isolation that comes with rare parenting, and what it means to lose a child to a disease no one else seems to understand. As both a psychologist and a rare disease dad, Dr. Freedman brings a unique perspective—sharing how his personal experience shaped the work he does to support other families navigating similar journeys. This episode is a testament to the love, resilience, and heartbreak of rare parenting—and the community that can be built around it. Connect with Dr. Al: https://www.rarecounseling.com Find Heather and Jake's Help from Heaven: ❤️ APOY Instagram: https://www.instagram.com/aplaceofyespodcast/ ❤️ Heather's Instagram: https://www.instagram.com/heathersstraughter/ ❤️ Jake's Help from Heaven: http://jakeshelpfromheaven.org/ ❤️ Jake's Help from Heaven IG: https://www.instagram.com/jakeshelp/ ❤️ Facebook: https://www.facebook.com/jakeshelpfromheaven ❤️ Our YouTube Channel: https://www.youtube.com/@APlaceofYesPodcast

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