A Friend for the Long Haul's 1st Annual Long Covid Sickstravaganza Holiday Episode

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A Friend for the Long Haul: A Long Covid Podcast

A Friend for the Long Haul

40 episodes

5 days ago

Are you struggling with Long COVID-19, ME/CFS, chronic illness, or disability? "A Friend for the Long Haul" is a Long COVID podcast that aims to be a supportive companion. This podcast offers insights, humor, and shared stories within a community that understands. Each episode features a Long COVID patient or ally to help you feel less isolated, because you are not alone.

All content for A Friend for the Long Haul: A Long Covid Podcast is the property of A Friend for the Long Haul and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

A Friend for the Long Haul's 1st Annual Long Covid Sickstravaganza Holiday Episode

A Friend for the Long Haul: A Long Covid Podcast

1 hour 18 minutes 17 seconds

10 months ago

A Friend for the Long Haul's 1st Annual Long Covid Sickstravaganza Holiday Episode

A Friend for the Long Haul - A Long Covid Podcast 100% produced by a disabled Covid long hauler. If you'd like to support my work, please check out the following ways you can do so:

My ⁠Amazon wish list⁠, which currently focuses on low-spoon activities for my family this summer. We have four kiddos, with three kids who are also navigating disabilities.
You can also visit my ⁠⁠new Amazon storefront⁠⁠, where I share only the items I use, love, or highly recommend. If you use my links to buy products you already purchase from Amazon, they'll throw me a few pennies.
Check out my ⁠Bonfire shop⁠, where I create and sell long Covid items (shirts, totes, hats, etc) that reflect my dark sense of humor coping mechanism.

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Welcome to the 1st Annual Long Covid Sickstravaganza Holiday Episode! This episode features contributions from a few different lovely folks:

Segment 1 features my 7 year old. We discuss what he really wants for the holidays - which is apparently for me to stop being so hard on myself. Oof.
For Segment 2, The Long Covid Choir kindly shared a recording of a holiday song with us, called Alles Schweiget! Included is an introduction from choir director Merel van der Knoop. You can watch a video the choir put together on YouTube.
In Segment 3, I have a chat with Lior Ocean about what a crock new year's resolutions are, and we discuss self compassion and showing ourselves loving kindness in 2025
Segment 4 features Joe Glasgow, who contributed a story called If These Pillows Could Talk
Nina Storey kicked my ass with shares a demo of a new song called Shadows Fall (Love Myself). Nina said: "Let your audience know you inspired me after we spoke after your iron infusion, and every person dealing with a chronic illness and chronic pain or disability inspires this song too. We are all warriors."

Lyrics: Shadows Fall (Love Myself) Written by Nina Storey

Verse I

so long alone

surrounded by the noise

still on my own

scattered through an empty void

but get up and I show up

cause I've grown up in the dark

and I'm bleeding but I'm breathing

and I know I'm come so far

Chorus

shadows fall from yesterday

what I've lost is far away

where to go when all the love is gone

when everyone has walked away

and I alone have got to stay

I learn to love myself and carry on

Verse II

take my life in minutes count them each a win

when I reach the end of one, then I start to count again

so I'll fake it, 'till I make it

cause most don't seem to care

but I'm ready and I'm clawing my way back for every breath of air

Bridge

I survived a stormy ride across my...