DD SIG Navigating the Path Episode 3: The ALS Association

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4D: Deep Dive into Degenerative Diseases - ANPT

Academy of Neurologic Physical Therapy

85 episodes

3 weeks ago

The Academy of Neurologic Physical Therapy Degenerative Disease Special Interest Group (DDSIG) is a component of the American Physical Therapy Association. The DDSIG is comprised of physical therapists, physical therapist assistants, and students in physical therapy programs that have an interest in neurodegenerative disorders including Parkinson's disease, multiple sclerosis, amyotropic lateral sclerosis, Huntington's disease, and others. The DDSIG provides a forum to discuss advances in practice and the challenges of providing care for individuals with neurodegenerative disease. They are a valuable networking tool to help researchers, educators, and clinicians in the area of neurodegenerative disorders connect, share ideas, and learn from leaders in the field.

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DD SIG Navigating the Path Episode 3: The ALS Association

4D: Deep Dive into Degenerative Diseases - ANPT

5 months ago

DD SIG Navigating the Path Episode 3: The ALS Association

In this episode, host Ken Vinacco sits down with guests Lauren LaMar and Kyle Vasher to discuss the range of resources that the ALS Association offers for people with ALS. Lauren shares her role in the multidisciplinary clinic as well as the range of online, local and one-on-one support services offered for patients and caregivers. Kyle adds his input as a DD SIG liaison and treating therapist. Filled with great advice, perspective and practical resources to share with patients, this is a helpful listen for PTs treating patients with ALS.

The Degenerative Diseases Special Interest Group is part of the Academy of Neurologic Physical Therapy – www.neuroPT.org

For questions about this podcast, please contact neuroddsig@gmail.com.

Resources from the ALS Association

Medicare information: https://www.als.org/navigating-als/financial-information/medicare-information

Caregiver education and support groups: https://www.als.org/navigating-als/support-for-caregivers

Care Matters newsletter: https://www.als.org/care-matters-sign-up

Multidisciplinary clinic locator: https://www.als.org/support/certified-centers-clinics

Education for healthcare professionals: https://www.als.org/navigating-als/education-healthcare-professionals

     - Rehabilitative Care for ALS: Guidance for PTs and OTs: https://app.schoox.com/login.php?courseId=8207995

Printed materials: https://www.als.org/order-portal

Transfer technique videos: https://www.youtube.com/watch?v=C6QI9CQO63I&list=PL2RF9Bwbv6Com3nZM-jFh_EGl3Gmn6S43

Virtual home modification and safety assessment program: https://www.als.org/support/programs/virtual-home-modification-and-safety-assessment-program

ALS Insurance Navigator https://www.als.org/support/als-insurance-navigator

ALS Advocacy Team https://www.als.org/advocacy/action-center

Show notes: https://app.box.com/s/q45h3p0fsgiuzluwxtzajnupp5hyofr2