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1 of 20 Podcast
Jonathan Cappiello
53 episodes
1 week ago
Jonathan Cappiello was diagnosed with a rare genetic disorder that only 20 people in the world have. The condition is called 3 hydroxyacyl coa synthase deficiency, which in short compromises his immune system and his body cannot process fats. Each week, he will discuss his lifestyle, his diet, and how he adapted to his condition. Additionally, he has a variety of guests to talk about their conditions. If you’re interested in genetics, rare disorders, medicine, and healthy living-- this is the podcast for you!
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Medicine
Health & Fitness
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Jonathan Cappiello was diagnosed with a rare genetic disorder that only 20 people in the world have. The condition is called 3 hydroxyacyl coa synthase deficiency, which in short compromises his immune system and his body cannot process fats. Each week, he will discuss his lifestyle, his diet, and how he adapted to his condition. Additionally, he has a variety of guests to talk about their conditions. If you’re interested in genetics, rare disorders, medicine, and healthy living-- this is the podcast for you!
Show more...
Medicine
Health & Fitness
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Rare Patient Voice - Wes Michael
1 of 20 Podcast
36 minutes 18 seconds
9 months ago
Rare Patient Voice - Wes Michael

Season 5, Episode 2: In conversation with Wes Michael

→ Who?: Wes Michael, the President and Founder of Rare Patient Voice

→ Rare Disease Connection: Wes Michael founded Rare Patient Voice in 2013 to give patients and caregivers with rare diseases the opportunity to voice their opinions in research studies.

→ What is Rare Patient Voice: Rare Patient Voice empowers patients and family caregivers to share their voices with researchers and companies developing products, devices, and treatments to improve lives. Their vision is to include the patient voice in research and ultimately improve the lives of patients everywhere. Rare Patient Voice is built on the core values of being a supportive resource for their

patients, a reliable partner to our clients, a responsible employer for their staff, and a

good citizens in their community. They are always listening to three key voices -- their

patients, clients, and employees. 

→ Where to find Wes and Rare Patient Voice?:

https://www.linkedin.com/in/wesmichael

https://www.instagram.com/rarepatientvoice

https://www.facebook.com/rarepatientvoice



1 of 20 Podcast
Jonathan Cappiello was diagnosed with a rare genetic disorder that only 20 people in the world have. The condition is called 3 hydroxyacyl coa synthase deficiency, which in short compromises his immune system and his body cannot process fats. Each week, he will discuss his lifestyle, his diet, and how he adapted to his condition. Additionally, he has a variety of guests to talk about their conditions. If you’re interested in genetics, rare disorders, medicine, and healthy living-- this is the podcast for you!