Season 5, Episode 11: In conversation with Natalia Cordero

→ Who?: Natalia Cordero is a rare disease mom, advocate, and podcast host. She started in Dylan's world, a space for medical families to get information about grants in Georgia, resources, events, recommendations, and more all in one place. Additionally, she Co-Hosts the Medical Momma Drama podcast, where she and her co-host Jen, talk about the challenges and victories of being Mommas of special needs children. Join them as they share personal stories, learning moments, and the experience they've gained through the drama of being a medical momma.

→ Rare Disease Connection: Natalia is the mom and caregiver to Dylan, who has MECP2 duplication syndrome.

→ What is MECP2 duplication syndrome?: MECP2 duplication syndrome is a condition that occurs almost exclusively in males and is characterized by moderate to severe intellectual disability. Most people with this condition also have weak muscle tone in infancy, feeding difficulties, poor or absent speech, or muscle stiffness (rigidity). Individuals with MECP2 duplication syndrome have delayed development of motor skills such as sitting and walking. 

→ Where to find Natalia?:

@imnataliacordero_
@medicalmommadrama

https://www.indylansworld.org/ 

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