Season 5, Episode 3: In conversation with Ken Sullivan

→ Who?: Ken Sullivan, a rare disease, patient and advocate. 

→ Rare Disease Connection: Ken patient living with Hypermobile Ehlers-Danlos Syndrome; Periodic Limb Movement Disorder.

→ What is Hypermobile Ehlers-Danlos Syndrome: Hypermobile Ehlers-Danlos syndrome (hEDS) is a heritable connective tissue disorder that causes generalized joint hypermobility, joint instability, and chronic pain. hEDS is also associated with a variety of other symptoms and related conditions that affect many different areas of the body.

Periodic Limb Movement Disorder: Periodic limb movement disorder is rarely a primary disorder. It is mainly associated with restless leg syndrome, which may be primarily idiopathic or secondarily due to pregnancy or systemic disorders, particularly iron deficiency and chronic renal insufficiency.