Hemophilia A - Patrick James Lynch

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1 of 20 Podcast

Jonathan Cappiello

53 episodes

6 days ago

Jonathan Cappiello was diagnosed with a rare genetic disorder that only 20 people in the world have. The condition is called 3 hydroxyacyl coa synthase deficiency, which in short compromises his immune system and his body cannot process fats. Each week, he will discuss his lifestyle, his diet, and how he adapted to his condition. Additionally, he has a variety of guests to talk about their conditions. If you’re interested in genetics, rare disorders, medicine, and healthy living-- this is the podcast for you!

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Hemophilia A - Patrick James Lynch

1 of 20 Podcast

56 minutes 48 seconds

1 year ago

Hemophilia A - Patrick James Lynch

Season 4, Episode 10: In Conversation with Patrick James Lynch, CEO of Believe Limited

→ Who?: Patrick James Lynch is the founder and CEO of Believe Limited, a media production company dedicated to telling the stories of inspiring individuals overcoming health challenges, particularly those in the bleeding disorders community.

→ Rare Disease Connection: Patrick is an individual living with Hemophilia A. Based on his own personal experiences with his condition, and his passion for film and media – he teamed up with Ryan Gielen to create their first project was Stop The Bleeding!, a comedic web series for young people with hemophilia.

→ What is Hemophilia A?: Defined by the National Organization of Rare Diseases (NORD) Hemophilia A, also known as classical hemophilia, is a genetic bleeding disorder caused by insufficient levels of a blood protein called factor VIII. Factor VIII is a clotting factor. Clotting factors are specialized proteins that are essential for proper clotting, the process by which blood clumps together to plug the site of a wound to stop bleeding. Individuals with hemophilia A do not bleed faster or more profusely than healthy individuals, but because their blood clots poorly, they have difficulty stopping the flow of blood from a wound.

→ Where to find Patrick?:

https://www.believeltd.com/

https://www.instagram.com/believeltd/

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