Healthcare in Rural Communities and ITP/hEDS

https://is1-ssl.mzstatic.com/image/thumb/Podcasts211/v4/2f/a1/42/2fa142a9-35bf-b051-0314-212cf146a46d/mza_8957293282390434276.jpg/600x600bb.jpg

1 of 20 Podcast

Jonathan Cappiello

53 episodes

6 days ago

Jonathan Cappiello was diagnosed with a rare genetic disorder that only 20 people in the world have. The condition is called 3 hydroxyacyl coa synthase deficiency, which in short compromises his immune system and his body cannot process fats. Each week, he will discuss his lifestyle, his diet, and how he adapted to his condition. Additionally, he has a variety of guests to talk about their conditions. If you’re interested in genetics, rare disorders, medicine, and healthy living-- this is the podcast for you!

Medicine

Health & Fitness

RSS

All content for 1 of 20 Podcast is the property of Jonathan Cappiello and is served directly from their servers with no modification, redirects, or rehosting. The podcast is not affiliated with or endorsed by Podjoint in any way.

Medicine

Health & Fitness

https://d3t3ozftmdmh3i.cloudfront.net/staging/podcast_uploaded_nologo/12566149/12566149-1751300409277-bd53c5731b945.jpg

Healthcare in Rural Communities and ITP/hEDS - Shea Linton

1 of 20 Podcast

47 minutes 24 seconds

6 months ago

Healthcare in Rural Communities and ITP/hEDS - Shea Linton

Season 5, Episode 12: In conversation with Shea Linton

→ About Shea: She is a patient advocate living with Idiopathic Thrombocytopenic Purpura (ITP) and Hypermobile Ehlers-Danlos Syndrome (hEDS). She has served as a South Carolina Representative through the Young Adult Rare Representatives (YARR) organization since February 2022. As a graduate of Winthrop University, she plans to attend medical school to pursue her goal of becoming a pediatrician. She hopes to use her personal experience living with multiple rare diseases to spread awareness about the issues facing the rare disease community. Raised in rural South Carolina, she seeks any opportunity to educate on the disadvantages surrounding a lack of access to care.
→ What is Idiopathic Thrombocytopenic Purpura (ITP)?: Idiopathic Thrombocytopenic Purpura (ITP) is a rare autoimmune condition characterized by a low platelet count, leading to easy bruising and bleeding.
→ What is Hypermobile Ehlers-Danlos Syndrome (hEDS)?: Hypermobile Ehlers-Danlos Syndrome (hEDS) is a heritable connective tissue disorder that causes generalized joint hypermobility, joint instability, and chronic pain. hEDS is also associated with a variety of other symptoms and related conditions that affect many different areas of the body.
→ Where to find Shea?:
@shea_linton
✨✨✨
#RareDiseaseAwareness #FightForACure #RareButReal #InvisibleIllness #RareDiseaseCommunity #RareDiseasePodcasts #ListenToRareVoices #RareStories #RareDiseaseAwareness #PodcastLife #PodcastsToListenTo #PodcastRecommendations #PodcastCommunity #IdiopathicThrombocytopenicPurpura #ITPawareness #PlateletDisorder #HypermobileEDS #hEDSawareness #EhlersDanlosSyndrome #connectivetissuedisorder