Season 5, Episode 7: In Conversation with Erin Danzer
→ Who?: Erin Danzer is a 26 year old and is in the process of transferring to Cal-state to pursue her bachelor’s in Communications. She loves to write and craft in her spare time. She is a fierce advocate for FOP, rare disease and the chronic illness community, utilizing her social media to raise awareness.
→ Rare Disease Connection: Erin is a rare disease and advocate patient living with Fibrodysplasia ossificans progressiva (FOP).
→ What is Fibrodysplasia ossificans progressiva (FOP)?: It is an extremely rare genetic connective tissue disorder characterized by the abnormal development of bone in areas of the body where bone is not normally present (heterotopic ossification), such as the ligaments, tendons and skeletal muscles. Specifically, this disorder causes the body’s skeletal muscles and soft connective tissues to undergo a metamorphosis, essentially a transformation into bone, progressively locking joints in place and making movement difficult or impossible.
→ Where to find Erin?:
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