Season 5, Episode 1: In Conversation with Carter Hemion
→ Who?: Carter Hemion, a trailblazing advocate in the rare disease, disability and immunocompromised spaces.
→ Rare Disease Connection: Carter is an individual living with Ehlers-Danlos syndrome, Mast Cell Activation and Gastroparesis.
→ What is Ehlers-Danlos Syndrome: Defined by the National Organization of Rare Diseases (NORD) Ehlers-Danlos syndrome (EDS) is a group of related disorders caused by different genetic defects in collagen. Collagen is one of the major structural components of the body. Collagen is a tough, fibrous, protein, and serves as a building block essential in both strengthening connective tissue (e.g. bones) and providing flexibility where needed (e.g. cartilage).
→ Where to find Carter?:
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